A little scared

Karon · #1 (**permalink**) 13-11-07, 13:15

Hi,
I am 21 weeks pregnant and found out last week that my unborn baby boy has a mild form of spina bifida.
The specialist said he may be perfectly fine but he may have bowel and blader problems.
Just wondering if anyone else has had experiance of spina bifida?

Thanks
Karon

ladybug · #2 (**permalink**) 13-11-07, 13:17

No, no experience here, sorry. Hope you're ok hon you must have got a fright being told that xxxx

How do they know, btw?

noababy · #3 (**permalink**) 13-11-07, 13:21

Oh you poor thing-you really must be worried. Big big hugs!

Please do research because with all the advances in intero utero (while pregnant) surgery that has been made, there may be something that can help. Either way you need the research to learn all you can about this.

Just took a quick look-there are surgeries being done. See
http://www.michaelclancy.com/story.html

This link comes with a contact us link:
http://www.fetalcarecenter.org/fetal.../spina-bifida/

http://www.vanderbilt.edu/News/regis..._99/babies.htm

http://www.angelfire.com/vt2/graciespage/

These are just a few links I pulled up-search for intero utero surgery spina bifida
Lots of luck and keep us posted and of course big big hugs!

noababy · #4 (**permalink**) 13-11-07, 13:23

Quote:

Originally Posted by ladybug

No, no experience here, sorry. Hope you're ok hon you must have got a fright being told that xxxx

How do they know, btw?

By scan usually

acad · #5 (**permalink**) 13-11-07, 13:27

no experiance, sorry x
but sending you a big hug xxxxxxxxxx

Claire76 · #6 (**permalink**) 13-11-07, 13:45

Oh that must have been very scary when they told you that. Sending you HUGS xx

rhianwen · #7 (**permalink**) 13-11-07, 14:06

Sending you big hugs hunny what a frightnening experince

fiona25 · #8 (**permalink**) 13-11-07, 14:26

Sending you lots of hugs pet, hope your ok xxxxxx

Karon · #9 (**permalink**) 13-11-07, 14:44

Quote:

Originally Posted by ladybug

No, no experience here, sorry. Hope you're ok hon you must have got a fright being told that xxxx

How do they know, btw?

Hi,
They found a lump at the bottom of his back at the 20 week scan, i then had to have another more detailed scan to find out what it is and how bad.
They wernt sure at first because his brain and spine look ok, a specialist said it is a rare form which is a little less scary but still a big shock.

Thank you everyone for your support

Karon

kerri-anne · #10 (**permalink**) 13-11-07, 15:33

Hi Karon,

I can only imagine how scared you must be right now, I'm so sorry for you but will keep everything crossed that he is ok.

Sending big hugs xxxx