Babies with small heads

[rachaelmae]

Originally Posted by cwoodford1979

Thanks for the quick reply
Definately and she said that if it is Reubinstein-Taybi Syndrome that is not a degenerative (sp) condition so her development will no regress in anyway and she has no health problems so the outlook is positive xx

Thats fantastic so you can relax and enjoy her must of been such a worryxxxxxxxxxx

[iwantone]

So glad that you have answers & the outcome is positive. Sounds like Grace is doing fine. She will get there in her own time. She will probably receive physical therapy won't she to help her with walking?? x

[cwoodford1979]

Originally Posted by iwantone

So glad that you have answers & the outcome is positive. Sounds like Grace is doing fine. She will get there in her own time. She will probably receive physical therapy won't she to help her with walking?? x

The Paediatrician has reffered her for physio and we are waiting for the appointment to come through hopefully it won't be to long a wait.
Claire x

[noababy]

Am sure you have seen this but figured in case not I would post it.

RTSUK - Rubinstein Taybi Syndrome UK Support Group

[cwoodford1979]

Hi Susie

Thanks for the link, I visited the site before but thank you anyway its very kind of you to look into it for me

Claire x