#31 (permalink)  
Old 10-12-08, 21:16
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Quote:
Originally Posted by cwoodford1979 View Post
Thanks for the quick reply
Definately and she said that if it is Reubinstein-Taybi Syndrome that is not a degenerative (sp) condition so her development will no regress in anyway and she has no health problems so the outlook is positive xx
Thats fantastic so you can relax and enjoy her must of been such a worryxxxxxxxxxx
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  #32 (permalink)  
Old 11-12-08, 04:23
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So glad that you have answers & the outcome is positive. Sounds like Grace is doing fine. She will get there in her own time. She will probably receive physical therapy won't she to help her with walking?? x
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Old 11-12-08, 07:43
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Originally Posted by iwantone View Post
So glad that you have answers & the outcome is positive. Sounds like Grace is doing fine. She will get there in her own time. She will probably receive physical therapy won't she to help her with walking?? x
The Paediatrician has reffered her for physio and we are waiting for the appointment to come through hopefully it won't be to long a wait.
Claire x
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Old 16-12-08, 05:36
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Am sure you have seen this but figured in case not I would post it.

RTSUK - Rubinstein Taybi Syndrome UK Support Group
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Old 16-12-08, 18:20
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Hi Susie

Thanks for the link, I visited the site before but thank you anyway its very kind of you to look into it for me

Claire x
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